Cystinosis Research Foundation
Profile
Current
(Last updated:
Aug 24, 2026
)
Current Fiscal Year
Fiscal Year Start Date: July 1, 2026
Fiscal Year End Date: June 30, 2027
Projected Revenue: $2,713,000
Projected Expense: $2,846,922
Revenue vs. Expense ($)
Expense Breakdown: 2025 (%)
| Administration Expense | 0% |
| Program Expense | 0% |
| Fundraising Expense | 0% |
Expense Breakdown: 2024 (%)
| Administration Expense | 11.0% |
| Program Expense | 85.1% |
| Fundraising Expense | 5.2% |
Expense Breakdown: 2023 (%)
| Administration Expense | 6.5% |
| Program Expense | 88.8% |
| Fundraising Expense | 5.6% |
990 Tax Form
Tax Year 2025 Form 990 (Fiscal Year ending in 2025)
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Tax Year 2024 Form 990 (Fiscal Year ending in 2024)
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Tax Year 2023 Form 990 (Fiscal Year ending in 2023)
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Tax Year 2022 Form 990 (Fiscal Year ending in 2022)
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Prior Three Years Total Revenue and Expense Totals
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Revenue | - | $3,177,424 | $3,187,305 |
| Total Expenses | - | $3,438,007 | $4,157,212 |
Prior Three Years Revenue Sources
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Foundation and Corporation Contributions | - | $750,000 | $700,000 |
| Government Contributions | - | $0 | $0 |
| Federal | - | $0 | $0 |
| State | - | $0 | $0 |
| Local | - | $0 | $0 |
| Unspecified | - | - | - |
| Individual Contributions | - | $691,342 | $1,791,031 |
| Indirect Public Support | - | $0 | $0 |
| Earned Revenue | - | $0 | $0 |
| Investment Income, Net of Losses | - | $546,270 | $538,810 |
| Membership Dues | - | $0 | $0 |
| Special Events | - | $1,004,125 | $248,755 |
| Revenue In-Kind | - | $0 | $0 |
| Other Revenue | - | $0 | $0 |
Prior Three Years Expense Allocations by Type
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Program Expense | - | $2,925,249 | $3,690,813 |
| Administration Expense | - | $377,516 | $271,338 |
| Fundraising Expense | - | $177,670 | $232,868 |
| Payments to Affiliates | - | $0 | $0 |
| Total Revenue/Total Expenses | - | 0.92 | 0.77 |
| Program Expense/Total Expenses | - | 85% | 89% |
| Fundraising Expense/Total Revenue | - | 6% | 7% |
Prior Three Years Assets and Liabilities
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | - | $10,029,959 | $10,415,385 |
| Current Assets | - | $4,442,950 | $5,144,486 |
| Long-Term Liabilities | - | $0 | $0 |
| Current Liabilities | - | $2,507,431 | $2,669,298 |
| Total Net Assets | - | $7,746,088 | $8,662,512 |
Short Term Solvency
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Current Assets/Current Liabilities | - | 1.77 | 1.93 |
Long Term Solvency
| Fiscal Year | 2025 | 2024 | 2023 |
|---|---|---|---|
| Long Term Liabilities/Total Assets | - | 0% | 0% |
Endowment/Capital Campaigns
Are you currently in a Capital Campaign? No
CONTACT
Cystinosis Research Foundation
3501 Jamboree Ave.
Suite 920
Newport Beach, CA 92660-2959
Nancy Stack
Phone: 949-223-7610