Cystinosis Research Foundation
Profile
Current
(Last updated:
Aug 24, 2026
)
Board Chair
| First Name | Last Name | Start Date | End Date |
|---|---|---|---|
| Nancy | Stack | April 1, 2002 | - |
Board Members
| First Name | Last Name | Company Affiliation |
|---|---|---|
| Marcu | Alexander | Hearts for Hadley |
| Stephanie | Cherqui, PhD | University of California, San Diego |
| Clay | Emerson | Hope for Brooke |
| Jill | Emerson | Hope for Brooke |
| Denice | Flerchinger | Tina's Hope for a Cure |
| Stephen | Jenkins, MD | University of Utah Hospital |
| David | Mossman | Aztec Mustang |
| Kristen | Murray | Seth's Circle of Hope |
| Kevin | Partington | Cushman & Wakefield |
| Teresa | Partington | Jenna & Patrick's Foundation of Hope |
| Donald | Solsby | Compass Direct |
| Geoffrey | Stack | SRG Partners |
| Brian | Sturgis | SimulStat |
Board Demographics – Ethnicity
| Ethnicity | Count |
|---|---|
| Other | 0 |
| Caucasian | 14 |
| Hispanic/Latino | 0 |
| African American/Black | 0 |
| Native American/American Indian | 0 |
| Asian Americans/Pacific Islander | 0 |
Board Demographics – Gender
| Gender | Count |
|---|---|
| Male | 7 |
| Female | 7 |
| Not Specified | 0 |
Board Stats
Number of times full board meets in a year: 2
Percentage of Board Members Making Monetary Contributions: 100%
CONTACT
Cystinosis Research Foundation
3501 Jamboree Ave.
Suite 920
Newport Beach, CA 92660-2959
Nancy Stack
Phone: 949-223-7610